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Vulvar Cancer: Anyone else?

Gynecologic Cancers | Last Active: Jan 9 4:22pm | Replies (88)

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@scm

I went to Mayo on Dec. 6th as planned. Saw several surgeons on my team and had a pet scan. The second surgeon removed the tumor and some margins. Pet scan showed clear lymph nodes but biopsy showed invasive melanoma more than .5 mm in depth. I am having a wide radical valvectomy on Jan. 2nd and they are going to take sentinel node biopsy. My surgeon said that the pet scan is very good at detecting major melanoma in organs and lymph nodes but has difficulty catching microscopic melanoma in the lymph nodes and she wants to be sure. Immunotherapy will follow. If it is found in the lymph system, then radiation, chemo and immunotherapy. I will be at Mayo in Rochester.
Where are you being treated?

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Replies to "I went to Mayo on Dec. 6th as planned. Saw several surgeons on my team and..."

@scm It’s good to see that you went to Mayo Clinic as planned and that you had a thorough visit. That was my experience when I was diagnosed with endometrial cancer in 2019 and then a recurrence in 2021. In fact, I will be at Mayo Clinic for my cancer surveillance appointments on January 9, just a week after you. I go to every one of these appointments with some anxiety and dread that has become a little better in the past two years. I understand the anxiety I experience is normal.

How are you feeling now that you have this plan in place and know that you’ll be having surgery on January 2?