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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 19 hours ago | Replies (7049)

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@kozykozon

My wife has had arachnoiditis for over 25 years. Our HMO doctor referred her to the HMO Pain Clinic. This will be the 5th pain clinic she is sent to. It's like Molikai, i.e. doctors are afraid of her and don't know what to do. Sort of like putting her on the Island with others who have the same condition. It's what they did to lepers in Hawaii.. She wants to die so badly but loves the grandchildren so much and they adore her.. She was on Meperidine and it's now off the market. IT was the only med that helped her live reasonably and now? We've been married for 48 years and are still intensely in love and care for each other always. We see the pain clinic doc on Wednesday and we both feel sick to our stomachs. Her story is a horror and too long to discuss. She needs the Demerol which helps enough to hang in there. The HMO will not provide it. She is allergic to everything else. I heard the Mayo deals with it without fear but, again, we are stuck with the HMO we can afford. She is on palliative care because hospice only deals with short term death. When she dies, I call the morgue. What can we do? What can we say?

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Replies to "My wife has had arachnoiditis for over 25 years. Our HMO doctor referred her to the..."

Dear @kozykozon , how I identify with every thing you posted earlier. I love my Grandchildren and my children so very much. And I live for the days that there is so little pain I forget what it is like to be in such a flare that it feels like I have been beaten.

I am in such a flare right now and can barely think straight. Trazodone used to help me greatly. My Rheumatology doctor has basically "fired" me. I don't have much left except to ask for a referral to our teaching hospital in Birmingham. UAB.

Love is all we need. To know we are loved. Sounds like you have that covered. God bless you.

Mamacita Jane