Any one been diagnosed with Primary Hyperparathyroidism

Hello @sirene,
10.2 is the high end of normal. So if you don’t have osteoporosis, kidney stones, fatigue, constipation, or the other symptoms that point to overactive parathyroids then that’s ok. Does your blood testing include a PTH test? That’s a test measuring your parathyroid hormone level. The normal range for an adult is 14-65 pg/ml. Mine was in the high 70s when my blood calcium level was 10.2. Interesting the 10 years prior to my surgery when my primary care Doctor was watching my levels, my blood calcium went higher a few times, as much as 10.6 one year but then my PTH would be lower, that year it was 9.9 But one of those levels, either the blood calcium level or the PTH, was high every year for me and when the surgeon saw my history he said I had had hyperparathyroidism for years. When those blood test numbers are not normal it’s cause to get an appointment with an endocrinologist to get it checked out. I wish I had known that. If your PTH level is in in the normal 14-65pg/ml level, then no cause for concern.

Hello @sirene,
10.2 is the high end of normal. So if you don’t have osteoporosis, kidney stones, fatigue, constipation, or the other symptoms that point to overactive parathyroids then that’s ok. Does your blood testing include a PTH test? That’s a test measuring your parathyroid hormone level. The normal range for an adult is 14-65 pg/ml. Mine was in the high 70s when my blood calcium level was 10.2. Interesting the 10 years prior to my surgery when my primary care Doctor was watching my levels, my blood calcium went higher a few times, as much as 10.6 one year but then my PTH would be lower, that year it was 9.9 But one of those levels, either the blood calcium level or the PTH, was high every year for me and when the surgeon saw my history he said I had had hyperparathyroidism for years. When those blood test numbers are not normal it’s cause to get an appointment with an endocrinologist to get it checked out. I wish I had known that. If your PTH level is in in the normal 14-65pg/ml level, then no cause for concern.

Hello @sirene,
10.2 is the high end of normal. So if you don’t have osteoporosis, kidney stones, fatigue, constipation, or the other symptoms that point to overactive parathyroids then that’s ok. Does your blood testing include a PTH test? That’s a test measuring your parathyroid hormone level. The normal range for an adult is 14-65 pg/ml. Mine was in the high 70s when my blood calcium level was 10.2. Interesting the 10 years prior to my surgery when my primary care Doctor was watching my levels, my blood calcium went higher a few times, as much as 10.6 one year but then my PTH would be lower, that year it was 9.9 But one of those levels, either the blood calcium level or the PTH, was high every year for me and when the surgeon saw my history he said I had had hyperparathyroidism for years. When those blood test numbers are not normal it’s cause to get an appointment with an endocrinologist to get it checked out. I wish I had known that. If your PTH level is in in the normal 14-65pg/ml level, then no cause for concern.

Thank you, I am going to go back and look at my bloodwork to see if they tested PTH. But I don’t remember seeing it. I contacted my endocrinologist, who I see in May. I may move the appointment up. Thanks again.

Hope you can get in earlier than May. Merry Christmas❤️

Yes I had surgery for hyperparathyroidism in the summer of 2021. I am very happy that I had it done. It can wreak a lot of havoc on your body if it goes undiagnosed for a long time. I went undiagnosed for years even tho I saw my internist every year and I saw a nephrologist every year for kidney stones (kidney stones, fatigue, and osteoporosis (all of which I had) are hallmarks for Hyperparathyroidism). My calcium blood level was fairly high(10.2) but not super high. Finally a new nephrologist I went to said I should see an endocrinologist. The endocrinologist diagnosed me as hyperparathyroid and I was scheduled for surgery within 2 months, with a surgeon in our town who is a specialist in parathyroid and thyroid surgery. It is very important to have a surgeon who has done many parathyroid surgeries as a general surgeon may not know the best techniques. He said he thought I had the problem for over 10 years and everyone missed it, even with my stones, osteoporosis and blood tests. The surgery was not terrible at all! It’s outpatient and you have a small incision on your neck ( I can hardly see mine now), you rest at home for 2 to 3 days and you are back to normal. I have not had a kidney stone since, I am on Zometa for osteoporosis and my fatigue went away. I felt my brain was fuzzy for a few years before the surgery, that got better too. There is no pill you can take for hyperparathyroids, you need surgery to reverse the problem. If it goes undetected for a long time it can affect your heart and other organs. There is also there is a link to breast cancer which unfortunately I had in 2022. Who knows if I had been diagnosed as hyperparathyroid in a timely manner if the breast cancer would have happened. I also broke a wrist, and had 2 spinal compression fractures. The bottom line is overactive parathyroids are nothing to fool around with. If your doctor says he is watching them, after what happened to me, I would insist on seeing a reputable endocrinologist to give me an opinion. Good luck to you and to the person who is being watched by her doctor. My doctor was watching but missed it. I just don’t want others to go through what I did. Sending wellness wishes to all on this board.

I was diagnosed with Graves disease and hyperthyroidism. I don't have faith in my endocrinologist. The last time I saw her was four months ago, and I won't see her again until February next year. I have so many things wrong with my body. Since my diagnosis of Graves disease, I have been diagnosed with BPH, fungal infections, high blood pressure, and pelvic floor dysfunction. I need to find another endocrinologist.