Hi @alla1967alla
I am very sorry for the experience you are going through with your daughter.
I have tried Mirena IUD in the past, before knowing I had epilepsy. I had constant bleeding and my gynecologist said it did not work for me and took it out. For women who have not had children, like me and your daughter I understand, Mirena might not work. So, to reduce my seizures triggered by my period, my gynecologist has prescribed a birth control pill with pausing 2/3 times a year. I take the pill without pausing for 4 to 5 months. It has been helpful to reduce my seizures from my periods.
Does your daughter have the support of a psychologist or neuropsychologist? This can be of great help and support in those times she is facing.
You said that the neurologist in your city is overbooked and not specialized in epilepsy. Nowadays, it has become much easier to consult a doctor online. The Epilepsy Foundation 24/7 line could help you with that, giving recommendations to doctors and neuropsychiatrists who work online and who are specialized in epilepsy. Give it a try! Here is the link: https://www.epilepsy.com/247-helpline
Wishing you both more colorful days!
Chris (Santosha)