Over the years I’ve learned that much of what’s happening with BMS is neuropathy. Nerve pain presents itself in a variety of ways. Sometimes I’ll feel like my tongue is too large for my mouth and it feels like I’m choking. Other times my gums all feel swollen. The pain on my tongue moves around constantly.

Just read about your situation and wanted to respond. I have read about patients who suffer with dental pain, though no cause can be found. Even after painful teeth are extracted, the pain persists. I’m trying to recall the terms the piece used to describe it. I found it researching my condition of a taste disorder, that has since been diagnosed as post covid syndrome. (And, it occurred a few months after several dental procedures, wisdom tooth extraction and dental bone graft.)Still, I continue searching for help as my tongue disorder causes me constant distress with the taste disorder. Seeing an ENT. Gabapentin didn’t really bring me relief, but I am going to start another med soon. And, my therapist has recommended hypnosis. I am trying to set that up. People don’t get how mouth pain can be so very distressing.

I really hope you can find the solution. I’ll post if I can find the link.

Have you been evaluated by a Functional disorder doctor? Did any traumatic event precede the onset of pain?