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Should I see a NET specialist?

Neuroendocrine Tumors (NETs) | Last Active: Dec 23, 2023 | Replies (33)

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@djchambers

Thanks to you and the others who replied. I can provide a little more information. About a year ago I had an abnormal result from an A1c test. My PCP at the time asked if I ate a lot of sweets, drank, sodas, etc. The answer is no. I eat a very healthy diet and have celiac disease. Nevertheless, I tried eating more raw vegetables and high fiber. Then I started with rectal bleeding. I had an endoscopy and colonoscopy. The endoscopy showed erosive gastritis.

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Replies to "Thanks to you and the others who replied. I can provide a little more information. About..."

I also have a history of being unable to eat some fresh fruits, such as apples. About that time I passed out when I tried to eat a pear. This summer I developed an ulcer which they confirmed with an endoscopy. In September I caught Covid for the first time, and my health crashed. I took Paxlovid and had terrible stomach pain, could not eat for about two weeks. I also couldn’t get out of bed without fainting. My husband took me for bloodwork, and they discovered I had severe anemia with hemoglobin of 6.1. I’ve been receiving iron infusions, but I’m still anemic, although my iron levels are full. I had the endoscopy with ultrasound earlier this month. They took biopsies of spots on my pancreas. The Gastro doctor initially told me I had stage four cancer most likely. However, pathology report showed net, very slow, growing and well differentiated. I’m scheduled to see Dr. Charles Scoggins, a surgical, oncologist at U of L. And then consult with Dr. Jeff Hargis, and oncologist.