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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 1 day ago | Replies (6803)Comment receiving replies
Hello again:
It is late nigth and I don´t understand where to write about myself.
My name is Marta. I am 33 years old. I was Early Music and harp student, also singing.
I had a Dengue fever five years ago. It left me with a moderated variant of Guillain-Barré. Doctors did not realize of that in that moment and the time passed. Now I have a Poly-Radiculo-Neuropathy. A condition that give me crisis of acute pain since my coxis to my lumbar, dorsal, cervical spine connecting with my head, face teeth, shoulders, chest, ribs, arms, and hands. I have pain all the time. I cannot sleep. Doctors prescribed first Gabapentine and then Carbamazepine. This last pill helps a little but my nights are infernal. I cannot be setting for much time, or resting in bed, or stay on foot. I cannot sustain a heavy book in my hands because of the pain. Of course I haven’t talck about the lost of muscle strength, but PAIN is what don´t left me never.
I am searching another medicine for neurological pain. It cannot contain Opium derivates, cause I am allergic.
I will thank your advices.
Marta
Replies to "Hello again: It is late nigth and I don´t understand where to write about myself. My..."
Hello @vradifegari, welcome to Connect. Although it is not the main source of your post, you may find the following Mayo Clinic Radio podcast of interest: Guillain-Barre Syndrome (Mayo Clinic Radio), https://connect.mayoclinic.org/page/podcasts/newsfeed-post/guillain-barre-syndrome-mayo-clinic-radio/.
@vradifegari, I see you also posted in the Brain & Nervous System group in regards to your radiculo-neuropathy. Were you aware there is Carbamazepine is classified in the anti-seizure medication class?
Hello Marta, I am very sorry for all of your pain. I also have/had severe pain from neuropathy in my feet. I cannot imagine how you must feel to have it in so many places, as just my feet pain was unbearable, and ruining my life. I must tell you about Scrambler/Calmare Therapy. I have many posts about it on the neuropathy sight. It is the only thing that has really helped me, and I have tried Physical Therapy, Acupuncture, Lasers, Gabapentin, and Duloxetine. I have posted lots of information about it in the Neuropathy Group. It is not cheap, and cost me 2500.00. Insurance does not cover it. The only other thing that helped, but only for a few hours, is CBD salves and tinctures. They worked much better than Gabapentin and Duloxetin. Let me know if you need more information, as I will happily give you whatever you need. You sound like you had/have many passions for life. My heart goes out to you. Please, please. If you need anything, let me know. Research Scrambler Therapy, because it really helps nerve pain. It is amazing. God bless, Lori Renee
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@vradifegari Good morning, Marta. Welcome to Mayo Clinic Connect. We're glad you found us. That is a long time to live with worsening pain; you must be exhausted! I'm so sorry you have had to go through this. Have your Dr's been able to give you any options that you can try? Non-medical but therapies that come to my mind include gentle yoga and stretching, massage therapy, warm water therapy, and a review of your diet to minimize foods that could cause increased inflammation. The website eatingwell.com may be a resource for you to look at for ideas on good nutrition with chronic inflammation. Here at Mayo Connect we are not Dr's but fellow patients and caregivers; we cannot offer medical advice but do share our experiences and what has worked [or not!] for us. Can you share with us what things you have tried beyond the two medications you mentioned? We care here, and want to help you out.
Ginger