I so when I hear others say I have SEVERE Raynauds ….. go straight to a Hematologist. My Raynauds also hit my thighs, stomach, upper arms, butt cheeks. “Yep your Raynauds is severe”, I heard.
One year later I searched out a new Hematolodist as my Rheumatologist had dxd me with Cold Agglutination. He said you don’t fit that. Tons of tests later I was told I have the ever rare Cryoglobulinemia Type 1.
My motto question everything and everyone!