Oh dear sounds very frustrating

Have you had any Endoscopies with biopsies, and dilations?

I bet you have a Candida infection in your mouth due to the steroid mouthwash, so please try to get a prescription for luquid antinfungal fluconazole 10 day course. Be sure to swish it around in your mouth and pull it through your teeth,and gargle before you swallow. Candida in the mouth and esophagus can cause as much problems as Lichen Planus itself

If the Lichen Planus is severe, you may want to try to get on Immuno suppressants.
Apparently, CellCept is the one most prescribed for Lichen Planus in the esophagus.

As for skin conditions, I have found for me a cream designed for psoriasis ( which I have also ) actually works well for my Lichen Planus on the skin -better than any steroid cream I’ve been prescribed:
‘MG 217 psoriasis’ The Main Active ingredient is salicylic acid, but there are other ingredients that I think are effective as well.

Here’s hoping u can find a good Gastro that knows Lichen Planus (A lot of Gastro‘s think it’s acid reflux ) and a good dermatologist that knows about autoimmune issues!

It’s a crazy journey… i’m always being told how rare this condition is, but I bet in years to come someone will put all of this together and then Hopefully there will be a lichen planus specialist that can help us on all fronts!