I had RP for G9 a little over a year ago. No initial sign of metastasis. 6 months later a single met to T8 treated at Emory successfully with SBRT. 4 months after that rapidly doubling PSA up to 4.6 with another PSMA PET showing positive node in the pelvis. Time for systemic therapy. I did exhaustive research and talked with numerous colleagues. Came across an article by Diane Reyes NP and Ken Pienta on TET (Total Eradication Therapy). Sounded like what I wanted. Contacted them through email and got rapid response. Had a zoom consultation within a week. Very impressed. Look up his/her credentials and peer reviewed publications on prostate cancer and its treatment. Started treatment almost immediately. Diane Reyes was/is wonderful and very efficient, responsive and thorough. Within 3 months I had chemo with Taxotere, Lupron, Darolutamide and 8 weeks later full pelvic radiation. My PSA became undetectable after 2nd chemo treatment and remains so a year later. I am now off all medication including Lupron.
I am very impressed with both Dr. Pienta and MS. Reyes. I feel as though they are treating my case individually rather than a set protocol. The field of treatment for oligo metastatic prostate cancer is evolving so rapidly that by the time Phase 3 trials are published and protocols become Standard of Care they may be behind the curve. I am certainly not out of the woods. I am not, nor likely will be, cured. But hopefully I can turn my disease into something more akin to a chronic illness and play whack a mole in the future.
I am certain there are many excellent, knowledgeable prostate cancer physicians at medical centers around the country. Finding one that fits you and having faith in their treatment is important. I wish everyone well in their journey.