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Any one been diagnosed with Primary Hyperparathyroidism
Diabetes & Endocrine System | Last Active: Feb 17 6:08am | Replies (54)Comment receiving replies
Hello @sirene,
10.2 is the high end of normal. So if you don’t have osteoporosis, kidney stones, fatigue, constipation, or the other symptoms that point to overactive parathyroids then that’s ok. Does your blood testing include a PTH test? That’s a test measuring your parathyroid hormone level. The normal range for an adult is 14-65 pg/ml. Mine was in the high 70s when my blood calcium level was 10.2. Interesting the 10 years prior to my surgery when my primary care Doctor was watching my levels, my blood calcium went higher a few times, as much as 10.6 one year but then my PTH would be lower, that year it was 9.9 But one of those levels, either the blood calcium level or the PTH, was high every year for me and when the surgeon saw my history he said I had had hyperparathyroidism for years. When those blood test numbers are not normal it’s cause to get an appointment with an endocrinologist to get it checked out. I wish I had known that. If your PTH level is in in the normal 14-65pg/ml level, then no cause for concern.
Replies to "Hello @sirene, 10.2 is the high end of normal. So if you don’t have osteoporosis, kidney..."
Thank you, I am going to go back and look at my bloodwork to see if they tested PTH. But I don’t remember seeing it. I contacted my endocrinologist, who I see in May. I may move the appointment up. Thanks again.
watch and wait..........yielded just bone loss. One of the endocrinologists in Oregon did a study on watch and wait. But the goal was also to determine the cost the the medical facility...ie, profit. In the 5 years of waiting my bone loss went way down and this was because of watch and wait....hell, a portion of the people in the study would have died just of old age and thus skewing the results. The radioactive tracing is good for tracing the location of the erratic parathyroid. Usually this is done right before surgery so "the right one" can be found because there is no reason to extract the good ones......just the hyperactive one. Mine happened to be hiding behind my thyroid but the radiology scan pinpointed it. (again the Norman Clinic) Also in medical history, there was not even a name for a parathyroid. I think this was even up to about 1940 (?? - can't remember). But the parathyroid has a distinct function apart from the thyroid. We need both. By the way, if you look up the Norman Clinic, there is a video of the surgery and it shows precisely the method of locating. My surgery was one day and no pain even though there was a 4 hour flight mixed in there.
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My PTH on November 17th was 70.5. I am having another scan today with the isotope injections. They saw a 3mm adenoma on the first ct. Thanks so much for your reply..Merry Christmas. Sincerely Kitty2