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Hello Berg55,
Colleen gave you some good sources, I’m sure. Check them out.
FWIW I can share my incontinence story for your info.
I had very similar RP January 2022. Similar good recovery. Did Kegels before and after RP. But I guess I lost too much of the sphincter likely due to a large prostate, 70cc.
Then, total incontinence. Of course this is the WORST possible urinary outcome. I was really bummed about the whole mess - - literal mess!
For about 15 months I struggled with Kegels. Never saw any improvement.
But like all of us in some ways or others, we cope with the situation and try to find the best response we can.
So at 75 years old I became an infant again. Yeah, it was a spirit crusher but nobody knew unless I told them. So how to cope???
I used Prevail brand briefs though I only could find them on Amazon; no big deal as their price was typical to others; they were just handy and not as bulky. Also, I’d get “Depends Guards for Men, 52 count”. (Luckily I found a much cheaper, and I felt better, store brand at out local chain, Meijers).
At the 15 month mark I got an AMS 800 artificial sphincter. And by a great surgeon too. Though I had to wait about 5 weeks for all the healing to be completed beyond any doubt. Then I had it activated. Right off I went from 7 to 8 pads + one brief per day to one pad and only the brief to hold it in place. In a week or so, I was comfortable that the new rig was working, I got smaller pads and regular jockey shorts. Less bulk!!! More comfort!!! And able to stand up to a commode (though I had to put my pants down since the AMS is a two handed operation) like a man!!!!!!!
What a spirit booster that was. Now I only wear a thin pad as another “just in case” though I’ll be tryin out NO supplemental pad right after the Holiday travel is over. And, yeah, I’m taking it slowly. I just don’’t want to relive that incontinence in any way.
Add that to my lifted spirit and now life is GOOD. No more changing pads every 2 hours! And I can go as much as 5-ish hours if I need to; longer means I’m not drinking enough.
So should the worst happen to you I am confident that you will cope and survive; and hopefully survive well.
So Kegal away and plan for the best but know what to do if it’s the worst.
Be strong, be positive, be creative and with the Good Lord’s help you’ll come out the other side with a great life to live.
All the best!!

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Replies to "Hello Berg55, Colleen gave you some good sources, I’m sure. Check them out. FWIW I can..."

@grandpun
Thank you for your detailed explanation of your experiences. I have just had my RP on 1/12/26. I am so fearful that I will have a similar experience like yourself. I am 57yoa. My prostate was very large at 95cc. Surgery took 5.5 hrs vs the estimated 3hrs. I had to have catheter for 2 weeks and after getting it removed I have zero bladder control. If I move, I am peeing. I get some relief laying down but when I sit up, peeing. Then stand up more pee. I have spoken to Dr's nurse and all I get for a response is "it's way early, healing takes 3-6 months." Well I am extremely worried that continence will never return. I too did kegals before surgery. I am told to wait 6 weeks before continuing kegel physical therapy. This is why I am here. I have searched far and wide for some direction and answers. Oh I forgot to mention my surgery was supposed to have successfully spared the nerve bundles. Has anyone transitioned from total incontinence to continence?