Any one been diagnosed with Primary Hyperparathyroidism

If an adenoma was seen on a scan, then you probably do need surgery to remove it. I have had dexa bone scans and 24 hour urine tests and so far all ok. 175 I think was my highest PTH, but it fluctuates but never normal. I am aware there are many symptoms a person can have with elevated PTH, but luckily I have none. I hope you will be ok. I have read it is important to have a surgeon who does alot of these surgeries.

My parathyroidism picked in ordinary blood test. Calcium highish but still normal.

My doctor was curious about my calcium levels and my parathyroid markers were very high so she referred me to the world famous clinic in Tampa, Florida. They were very professional and thorough. Three of my four parathyroid glands were effected so they removed them. Outpatient surgery, not a big deal. I believe my Afib and osteoporosis were caused by this irregularity, so I'm glad I got it taken care of. I had an ablation 18 months ago and so far no more Afib incidences. Osteoporosis is there but not getting worse so far. 😊

I agree................at least the osteoporosis is stable. Norman was great.
The calcium leaching from the bones could have gotten worse over time...........mine is stable now.
Actually rebuilding bone from osteoporosis is another issue??? - lots of research. Mostly the over the top promises with drugs like prolia.........this can cause necrosis of the jaw among other things. I don't want the side effects and have to eat pudding for the rest of my life. marceen in oregon

My wife also went to the Norman Parathyroid center in Florida. We give a 5 star rating to this center. These people are the best surgeons out there and not general surgeons. This is all they do.

To those of you posting in this discussion I’ll be the first to admit that I don’t know much about parathyroid. I have a full plate keeping track of diabetes and thyroid issues. I know that calcium (too much or too little) and its impact on bone health is a concern. This is an endocrinology and a nephrology issue as well. My endocrinologist and my nephrologist monitor calcium and parathyroid things. What specialists are you using to take care of yourselves?

How is it diagnosed? My calcium has been 10.2 and I have thyroid nodules but they haven't mentioned this.

Whats your PTH? It's done by blood test.

Hi..the one I had on Nov 17 was 70.5 ...the reference range was 7.5 - 53.5. I also had a ct scan and I am having a Sestamibi scan today at 11am. My calcium level that day was 9.5. I also had the 24 hour UA test done also. Thank you for your note. Sincerely, Kitty2

Hello @sirene,
10.2 is the high end of normal. So if you don’t have osteoporosis, kidney stones, fatigue, constipation, or the other symptoms that point to overactive parathyroids then that’s ok. Does your blood testing include a PTH test? That’s a test measuring your parathyroid hormone level. The normal range for an adult is 14-65 pg/ml. Mine was in the high 70s when my blood calcium level was 10.2. Interesting the 10 years prior to my surgery when my primary care Doctor was watching my levels, my blood calcium went higher a few times, as much as 10.6 one year but then my PTH would be lower, that year it was 9.9 But one of those levels, either the blood calcium level or the PTH, was high every year for me and when the surgeon saw my history he said I had had hyperparathyroidism for years. When those blood test numbers are not normal it’s cause to get an appointment with an endocrinologist to get it checked out. I wish I had known that. If your PTH level is in in the normal 14-65pg/ml level, then no cause for concern.