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← Return to Diagnosed with Ameloblastoma
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Hey guys, I hope you’re all well and finding lots of peace and clarity within this period! My ameloblastoma journey has been really odd, I had the free flap from the bone in my shoulder blade and now four months down the line the bone has failed so today I got the bone all removed and now I have to wait for the site to fully heal and then go from there so it’s all over the place as of now but I’m happy and forever grateful I’m in this position and I have learnt a lot and definitely become a better person because of this up and down journey. How is everyone else doing?
Replies to "Hey guys, I hope you’re all well and finding lots of peace and clarity within this..."
Well this is not the direction your journey was supposed to go. Nuts!
Other than to send hugs your way I am at a loss for words. You are in my thoughts and prayers that soon this all gets set right for you.
Sorry to hear @anbar04 . How did they know that bone has failed? Did they give the options now to fill the gap? I have my doctor appointment tomorrow to check on my flap because it leaked some fluid through a tiny hole 2 weeks back, feeling nervous about it.
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Just keeping on keeping on - the tiredness/lethargy from the targeted oral chemo is pretty much gone now that I've been on Synthroid for awhile. Other than that - I'm about 4 weeks away from my next followup, and about 8 weeks away from my next imaging followup. Hoping it shows shrinkage, but continuing at stable is still a win for me.
So sorry to hear that your bone transplant didn't take. I hope they figure out a good approach for you going forward!