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Has anyone had breast lymphedema which then spread to the arm?

Breast Cancer | Last Active: Dec 25, 2023 | Replies (39)
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@trixie1313

@timely
It could be you're having "axial webbing" which is a type of lymphedema which causes pain and limiting motion. I have lymphedema of the breast at times with "cording" or "axial webbing" going up my arm at times all the way to my wrist. The physical therapist started me on a "swell spot" which I wear under my bra for a week or two at a time which helps to resolve this, however, it does re-occur at times - it's just something I'm learning to live with and, now that I know what to do, I'm okay with it. The swell spot also helps soften the radiation fibrosis - yes, isn't that another great side effect, like having a lump of cement riding over your ribs? For the tender areas from surgical scars, I use Calendula cream (Boiron makes a nice cream) and that tends to help calm it down. Hang in there...wishing you the best.

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Replies to "@timely It could be you're having "axial webbing" which is a type of lymphedema which causes..."
timely | @timely | Dec 21, 2023

Hi@Trixie1313:

Thank you so much.
The axial webbing sounds
like something that I am working with.

I had a problem with the chip bag that the PT made for me.
If I wore it with any bra, it put pressure on the sentinel node area and caused pain at armpit and some spots on the arm which made little knots.

I do not see my PT again til the 2nd week in January.
I can only wear the mastectomy bra with a silicon liner on the lumpectomy side. This compression bra does not have any seams as such or are minimal and soft.
Are you wearing the swell spots inside the compression bra and where?
Should I be getting swell spots and putting them inside the compression bra with the silicon liner.
The silicon liner was very expensive and I do not want to damage it.

I have not found a regular bra that I can wear with the chip bag. I have stopped using the chip bag. All other bras cause pain at the sentinel node, and armpit.
Where did you buy the swell spots?

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