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@chuckmii

@colleenyoung Thank you for the reply and the links. She does speak to palliative doctors every few weeks and they did speak with me when she was in the hospital, trying to prepare me for it getting worse and needing to increase pain meds, etc when that happens. She has been in denial about this being non-curable but is starting to come to that realization. The surgeon call today shocked her, he signed off and said, any remaining bloating and discomfort is due to the cancer (which he saw) and I am turning you over to oncology. Not sure what she was expecting but that wasn’t it. She has been crying and now realizes the chemo is all she has left to fight this and based on the previous results and the fact that we are going to remove the oxiliplatin due to the side effects, it may not do much. She feels like we are back to where we started 5 months ago but is worse off due to everything that has happened to her body. Of course she wouldn’t be here at all right now if it wasn’t for the surgery but the infection and complications were hell for her. Add to all this the cancer drug shortages and you have to wonder how we all get through any of this.

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Replies to "@colleenyoung Thank you for the reply and the links. She does speak to palliative doctors every..."

Denial and acceptance are a part of the journey. Not easy.

At the risk of overloading you, I have some more links that were helpful for me and my family.
Again from Virtual Hospice:
- Hope and Denial https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Emotional+Health/Hope+and+Denial.aspx

There are professional supports out there for YOU and for your wife if and when you should need them like social work and chaplain services. Hospice volunteers are amazing too.

– How an Oncology Social Worker Can Help https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-an-oncology-social-worker-can-help/

There are social workers specializing in oncology and in palliative care.