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This is all helpful! I have a condition not formally dx, similar to chronic fatigue, that ebbs and flows depending on stress, activity, weather, etc. They don't know if I've had a mild case of covid or not, in addition to my other systemic, long term issues. I've learned not to beat myself up about something that's not well understood, and to be gentle in general, along with getting good daily walks, playing with my dog, spending time with husband and grands, as well as friends. Thankfully, I'm in a neighborhood where I can walk and see folks daily, with a YMCA few blocks away for yoga, exercise and socialization opps..... still, it's all 'touch and go', depending on how I feel. While it would be nice to have an answer, I'm 70 and have no desire to spend the rest of my life in doc ofcs or having more tests.... I'm just living my best life and enjoying it! Open to suggestions, tho!
Replies to "This is all helpful! I have a condition not formally dx, similar to chronic fatigue, that..."
Suss53; I have one of those conditions too (old age) and am trying to learn to slow things down. Like you, I'm tired of trying to convince my GP that I probably have LC (although I have about 7 or 8 of the cardinal symptoms). I know I've read/learned a lot more than she has, since it's been my research project for months. Also, I've been accepted into a LC Clinic as of 4/1/24, no thanks to her. Now she wants me to get more tests and seems to be focusing on my heart ... although EEG/ECG's, etc. result in the need for more tests and not much else. This pacing thing (mental and physical) is hard to learn but seems to be the only thing that works for me. Gradually feeling less ill, after positive Covid dx ten months ago. Thanks for your suggestion... just trying to live your life and enjoy it. For me that includes lots of music (Classical WFMT in Chicago), time to finally read the books and magazines piling up, hanging out with a 10-year old grandchild... tonight the Charlie Brown Christmas Special, with Vince Guaraldi's music. Let's just keep on keeping on...
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Welcome, @suss53. I love the last line of your message "I'm just living my best life and enjoying it!"
I see a lot of joy (and health) in the activities you listed. I'm trying to encourage my mom to pace herself more. Like you she's active and her activities bring her joy, socialization and are healthy behaviors. But sometimes (with increasing regularity) they set her back for a day. My observation is that she finds it hard to take breaks, especially when she feels good and people are around.
How do you pace yourself? What tips would you offer?