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Has anyone had MRI suspicious for malignancy but negative Mammo + US?

Breast Cancer | Last Active: Dec 22, 2023 | Replies (53)
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@semurrey

Thanks @gardenfairy for those links! I did have a MRI pre surgery which gave us more intel especially the size. It was hidden behind large cyst (very dense and many cysts) and I wonder how long it had been there - every year I did receive the letter saying I had dense breasts but honestly didn't think much of it - sure wish I had. I've read the same about lobular - that is often reoccurs later than ductal but I feel MRI alternating is offered to many but at Dana Farber I had a hard time getting my onco to approve MRI.

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Replies to "Thanks @gardenfairy for those links! I did have a MRI pre surgery which gave us more..."
sequoia | @sequoia | Dec 21, 2023

@semurrey, I have dense tissue breasts and in my younger days 😀 I was always told that, at each visit with my doctor. It was not mentioned in my ‘your mammo is normal’ letter. Then over the years mention ofdense tissue was just dropped from conversation. I just thought tissue got better or changed. I didn’t know. It was not until 2019 when I went to a breast surgeon for routine exam, that he said ‘you have dense tissue, let’s do a MRI and see what’s in there’ , that Dense Tissue was ever mentioned again. Lo & behold, cancer tumor was found. Mammo was normal.
I think , we have to be proactive & advocate for ourselves. Dense tissue is an issue for many women, I’m sure, and doctors are overlooking this!
Please call your insurance company and talk w/ the benefits person explaining your situation. If that person cannot help you, bump it up to the next level. Just keep saying ‘let me talk to your supervisor’. It is Your Life and you are paying for insurance. For someone sitting behind a desk denying your MRI coverage is ludicrous. 💪🏼🙏🏼❤️

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