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Anyone on Pluvicto? Looking for a support team

Prostate Cancer | Last Active: Apr 4 4:34pm | Replies (42)

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@eugenelapietra1

Super important that you not loss weight, eat even when your not hungry.... and don't worry about eating healthy, just eat everything...I eat ice cream for breakfast ! Take Dramamine for nausea before you get nauseous......... imperative that you assemble support staff. you need somebody with you in your home most of the day,........for physical support as well as emotional support.......You need to do that now, today!!!! You are in uncharted waters and its going to be a bumpy ride. My first Pluvicto shot was fine , no problem. The second shot landed me in the hospital in unimaginable pain.......I've decided to accept the fatigue ( you can't do anything about it anyway) and stay in bed and enjoy my dreams........Staying positive is so important. Watch comedy shows and forget the news...Please lets stay in touch , we need each other...Gene

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Replies to "Super important that you not loss weight, eat even when your not hungry.... and don't worry..."

Surgery 2016, radiation same year, HDT until failure Sept 2023, Chemo 4 sessions until failure, first Pluvicto 11/30/23 and second scheduled for 01/12/24.

Sorry to hear about you losing your wife, mine remains in my life, but can not deal with my disease. She has relocated and does visit often.

Chemo stopped and I feel better because of that so I have not noticed Pluvicto side effects. At least for now, Life has gotten better. I will stay on this site and report as more is known.

Thank you for your response and kind suggestions, weight is not a problem for me so far, probably due to the lenght of hormone treatment I went through ....( lack of testosterone ). I am sorry about you experiencing pain after your second treatment...Could you tell me more about it ? were you able to continue with your treatment ?