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Anyone experienced Bone Marrow Transplant with TP53 mutation?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 9 4:42pm | Replies (20)Comment receiving replies
Any new news? I have the TP53 at 2%. I am thinking the DR. said they have a couple possible matches. Two months on the transplant list. I will be at City of Hope in Duarte. Today I am in Fredonia NY visiting my sister. If i lived here, I would be at Mayo. He said I will have another blood test in 2 months. See where my numbers are. Platelets at 130.....white cells 2.9 but red are good. I donated platelets till 2021. 25 years. I had high counts. These numbers are why I asked my MO office to refer me to a hematologist.
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Hi katgob,
I'm certainly not one to diagnose your situation. But, I will tell you that City of Hope is one of the finest institutions for Bone Marrow Transplants. I probably would have gone there, but Cedars Sinai, another fine institute, is closer to my home. My disease was Myelofibrosis, one of the many blood cancers. I had my BMT on October 13. Unfortunately, I had a few unexpected complications and was in the hospital 38 days. I've now been home 5 or so weeks. My blood counts are slowly moving in the right direction, but the scaring from Myelofibrosis makes the stem cell engraftment a slower process. I am fortunate to have a good support group around me that continue to offer prayers and words of encouragement. As for TP53, doctors at both Cedars Sinai and City of Hope told me months ago that there is no current treatment for TP53. I haven't asked my doctor about TP53, since I had my transplant. I'm focusing on my recovery. My next bone marrow biopsy will be in about 30 days. At that time I'm sure I'll find out if TP53 is a factor. BTW...things are advancing rapidly in cancer research and City of Hope is the right place for new advancements.
A great resource on the internet is Be The Match. They provide all sorts of support for Bone Marrow/Stem Cell transplants. They are also the national registry for stem cell donors. You will most likely get your donor from there.
Best of luck as you move forward!