Thanks for the nod. I have background in clinical neurophysiology, and managed non nursing departments in a large Pediatric hospital - like radiology, laboratory, pharmacy, neuro, etc. - and I have lived long enough to have had my fair share of ailments. You are correct that I’m primarily a researcher -‘having had a career focus in regulator requirement testing. and outcome assurance.
I sympathize with where you found yourself relative to the apparent expense of Budesonide - Which today is easily circumvented thanks to discount pharmacy programs.

I will comment that a part of any drug success is patient confidence and their emotional investment in helping it succeed with diet and other patient driven activities - sleep, exercise,
Etc. So we should be slow to casually criticize an approved drug that could be someone’s hope to escape misery.

Sadly I know almost nothing about Sjogren’s. I know it can be treated with hydroxychloroquin because during the peak of Covid, the rumor started circulating that it was an effective antiviral. And people who really needed it - Sjogrens patients among them as I recall- had a supply crisis. I know it is an autoimmune disease affecting glands that secrete. And that’s about the end of my meager knowledge.
I’m willing be a sounding board but I would need to understand end use of my input.

Thanks
Pam

@suetex, you might wish to join these discussions with members talking about Sjogren's Syndrome.

All Sjogren's Syndrome discussions https://connect.mayoclinic.org/search/discussions/?search=Sjogren

You might wish to start here:
- Sjogren’s Syndrome – Introduce yourself and meet others
https://connect.mayoclinic.org/discussion/sjogrens/