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Has anyone had MRI suspicious for malignancy but negative Mammo + US?

Breast Cancer | Last Active: Dec 22, 2023 | Replies (53)
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@gardenfairy

Hello,
Your ILC post-op screening conflict with medical providers is a common one and I'm sorry you, too, are encountering this. Which screening tool first picked up the initial suspicion? Am I understanding correctly, you have had a lumpectomy but did not have a bilateral MRI with and without contrast during the diagnostic stage before surgery? Good that you are advocating for what you think is the right follow-up care for you. Something we are all called to do. There is considerable research that shows lobular cancer is often diagnosed at later stage due to breast density and difficulty of detecting it on mammogram. Here are a few articles about the use of MRI in early detection and other aspects.
https://ascopubs.org/doi/full/10.14694/EdBook_AM.2012.32.220
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10000992/
https://bit.ly/3TABnws

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Replies to "Hello, Your ILC post-op screening conflict with medical providers is a common one and I'm sorry..."
Sue Ellen Murrey | @semurrey | Dec 21, 2023

Thanks @gardenfairy for those links! I did have a MRI pre surgery which gave us more intel especially the size. It was hidden behind large cyst (very dense and many cysts) and I wonder how long it had been there - every year I did receive the letter saying I had dense breasts but honestly didn't think much of it - sure wish I had. I've read the same about lobular - that is often reoccurs later than ductal but I feel MRI alternating is offered to many but at Dana Farber I had a hard time getting my onco to approve MRI.

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