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PMR and exercise: What helps you?

Polymyalgia Rheumatica (PMR) | Last Active: Apr 26 1:16am | Replies (182)

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@ess77

@cpd54, @johnbishop, and all...I'm amazed at the activities some of you can continue even with PMR flaring and on prednisone. I haven't had that experience, but I've experienced multiple years of disabling bone and muscle and body issues so they've taken a toll. When PMR and GCA hit me hard in October/November, following COVID-19 it July, bronchitis in September, and worsening fatigue and pain, I ended up in bed unable to turn over or walk upright. Heck, I couldn't hold a ski pole or an ax...I'm amazed and thrilled for you.

I do want to add my support for the warm pool experience. I have therapy pool PT 2X weekly, except when I'm flaring like the last couple of months, and it is fantastic for my entire body. It is the only exercise I can do without consequences like increased pain, fatigue out the window, etc. When my big toe hits the warm, 95-degree, water, my body begins to relax. Muscles let go, bones stop aching, joints feel better, and emotionally I go into a wonderful place with less anxiety and more peace. It helps me more than anything, across the board.

I expect to get back to the pool on Jan. 1st. I'm thrilled! I'm having issues with the prednisone now with lack of sleep and unable to taper off yet. But, it usually helps me with these issues and I'll keep on it until....

I hope you all improve and find answers to help you live your best lives with these issues. It's challenging, but possible at times...Blessings, Elizabeth

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Replies to "@cpd54, @johnbishop, and all...I'm amazed at the activities some of you can continue even with PMR..."

I know what you're saying! While I waited 5 months to see my geriatric rheumatologist and get diagnosed with PMR, the orthopedic surgeon sent me to PT because I could barely walk. My PT was land-based but when he found out I love to work out and had gym memberships, he sent me to water walk and float in the
pool. I was able to progress eventually to swimming a few strokes! Here's what I loved: running in the heated, salt water pool: https://www.livescience.com/the-benefits-of-running-in-water. Google and Amazon are your friends to get the belt and a book.and that's all you need. Go at your own pace, no matter how slow.
Now my rheumatologist has me doing land exercises but I grew to love the pool even without swimming. Good luck!