← Return to Lupus or not Lupus?
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Replies to "I have been all over the map with auto-immune disease symptoms, tests, etc., and I will..."
@michelecallahan - YES!!! THIS!!!! I have various autoimmune symptoms. Sometimes positive ANA, sometimes negative ANA. Always positive RF and in a flare, my inflammatory markers go up tenfold. But what do I have? That's what I kept asking. I kept bringing in old tests "Look my creatine kinase is elevated! Look I have a V-sign on my chest!" On Monday, my doctor finally said "I know you want a diagnosis that's neatly tied up with a bow, but at the end of the day, it doesn't really much matter which it is - we treat the predominant symptoms, which in your case most closely matches spondyloarthritis with back pain and hip flexor pain, even though you don't have the gene and you have other overlapping symptoms." I left that appointment feeling like I may never know exactly what my diagnosis is, and I've decided that that's ok.
I hope you are feeling better since your transplant and that your flares have been few and far between 🙂
To @michelecallahan, thank you for your reply and totally grasp the concept of what you are saying. I agree that a specific dx is not necessary, but my Drs are not even treating the symptoms!!
P