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Just diagnosed with colitis...given Budesonide $$$$

Digestive Health | Last Active: Jan 10 3:29pm | Replies (50)
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@suetex

I have Crohn's and my small intestine was full of tiny, blister-like ulcers and my dr. gave me budesimide. This is a steroid meant to deliver steroid straight to the small intestine. Does it work,? Sure as long as you are on it. For actual healing relief I discovered Low Dose Naltrexone. I am now symptom free and my last colonoscopy was "normal". Finding a dr who will supply a script can be a challenge but worth the effort. Start with your GI dr first. He (she) might be more progressive than mine is. Best of luck.

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Replies to "I have Crohn's and my small intestine was full of tiny, blister-like ulcers and my dr...."
pb50 | @pb50 | Dec 20, 2023

I am truly Happy for you. But my 2 month course of budesonide did the trick a year ago! I haven’t needed it since.

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pb50 | @pb50 | Dec 20, 2023

When I was doing my research before initiating Budesonide for microscopic colitis, The literature I read described Naltrexone as an FDA approved opioid antagonist that was in phase two trials for an off-label use in various GI inflammatory disorders. But it seems it was administered in the phase 2 trials I reviewed as an adjunct drug to other primary anti-inflammatory drugs such as anti-TNF like Remicade or other drugs such as Methotrexate. That was late 2022 so I don’t know where in trials for GI issues it may be, but suffice to say at this point I believe it would be an off label use.

And to clarify regarding your reference to prescribing guidance for budesonide, it is not only untrue that realized improvement requires staying on the drug, it is exactly the opposite of guidance, which recommends a roughly 8-12 week course, beginning with 9mg/day and tapering to ceasing the drug.

I have no issue with being a
cheerleader for a positive drug experience anyone may have had, but I do prefer that one takes care not to misrepresent another drug as part of the cheerleading.

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