Replies to I was did with PMR in 2012. It was HORRIBLE. My ESR and CRP were off…

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Autoimmune Diseases | Last Active: Dec 27, 2023 | Replies (62)

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@slward1951

I was did with PMR in 2012. It was HORRIBLE. My ESR and CRP were off the charts. Good old prednisone came to the rescue with 60mg. I already had osteopenia so within 6 months that changed to osteoporosis due to compression fractures in back and pelvis. PMR generally is a temporary disorder that lasts for months may go longer. It took me 2+ years and 4 rheumatologists for ME to figure out I have Seronegative RA ( which 30% of RA patients have). I then went thru all the typical pill form of pill forms as well as Methotrexate shots to control it. I eventually moved on to Remicade infusions which finally got it into control.
My advice question everything and research and go on blogs like this. Best of Luck! 🌸

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Replies to "I was did with PMR in 2012. It was HORRIBLE. My ESR and CRP were off..."

apopson | @apopson | Dec 20, 2023

Thank you so much

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pb50 | @pb50 | Dec 20, 2023

I began my RA journey as seronegative, and questionable as to whether it was PMR because of my initial and very acute onse of pain and dysfunction in shoulders, hips, ankles and hands.
I was put on Humira and methotrexate in my brand new Rheumatologist’s office and had massive relief in 5 days. I’ve had to change biologic 3 times and abandon methotrexate due to liver impact , but I’ve stayed fairly well controlled. And three years ago I was retested for RA factor and it was extremely high. Go figure.

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