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@semurrey

Does anyone have evidence to share how alternating MRI and mammo for ILC surveillance in dense breasts (even while on Letrozole) should be protocol. I had to beg my oncologist at Dana Farber for an MRI as after lumpectomy (2cm), radiation and letrozole I had first mammo a full year after diagnosis. I then asked to have an MRI in 6 months and my oncologist doesn't think warranted. I begged and Dr. Caroline Block at Dana Farber said she would authorize but would not help me to get coverage if my health insurance denied. Very disappointed.

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Replies to "Does anyone have evidence to share how alternating MRI and mammo for ILC surveillance in dense..."

Hello,
Your ILC post-op screening conflict with medical providers is a common one and I'm sorry you, too, are encountering this. Which screening tool first picked up the initial suspicion? Am I understanding correctly, you have had a lumpectomy but did not have a bilateral MRI with and without contrast during the diagnostic stage before surgery? Good that you are advocating for what you think is the right follow-up care for you. Something we are all called to do. There is considerable research that shows lobular cancer is often diagnosed at later stage due to breast density and difficulty of detecting it on mammogram. Here are a few articles about the use of MRI in early detection and other aspects.
https://ascopubs.org/doi/full/10.14694/EdBook_AM.2012.32.220
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10000992/
https://bit.ly/3TABnws