← Return to Esophageal Lichen Planus

Discussion

Esophageal Lichen Planus

Autoimmune Diseases | Last Active: Oct 11 2:53pm | Replies (108)

Comment receiving replies
@knowjo

I have LP Along my spine, especially lower back, in my mouth and in my esophagus.

I can deal with all except for the esophagus, because it has caused strictures in the last 4 years . I’ve had 5 endoscopies with dilations within the last two years. Currently being treated with budesonide at night mixed with honey. Also, intermittently treated with fluconazole, which really helps w the candida (which actually causes as much discomfort as the LP) Everything in liquid form, I cannot swallow pills.

I’m trying lysine mixed with the budesonide at night. It seems to help.

I now avoid wheat and dairy bc allergic rhinitis but I think it actually helps LP.
Recently avoiding potatoes due to PSA .

I hope to learn Self Dilation technique w bougie this coming year w dr Alexander at Mayo - I don’t want to be put out all the time for endoscopies w dilations.

Also recently had covid for first time w sinus infection.
Was on Amox and paxlovid.
LP was better after that ( as well as the psoriatic arthritis so I stopped Otezla)

If anyone else has esophageal strictures due to Lichen Planus, I’d love to hear what has worked and what has not!

Jump to this post


Replies to "I have LP Along my spine, especially lower back, in my mouth and in my esophagus...."

Hi Knowjo,
I also have ELP, OLP and LP. I have strictures in my esophagus also. Things get stuck in my esophagus especially my pills in the morning. The OLP is tough to deal with. My mouth and tongue is always swollen and sore with lesions. The skin on my lower legs has lesions all over.
There isn't a specialist or doctor around here that has ever had a patient with ELP. The Gastroenterologists don't know of a physician in Seattle that has treated a patient with ELP. ( I live 90 minutes from Seattle.)
The only medications I have been prescribed is dexamethasone oral rince and a lidocaine oral rinse. I'm very frustrated!