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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 2 days ago | Replies (308)
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@menel

Hi, this forum was very helpful to me also, as CLIPPERS is so rare and few doctors know about it. I was initially diagnosed with MS, and more that 2 years later correctly diagnosed with CLIPPERS.

If you do not mind, kindly share your symptoms with us, or privately, then we can try to provide support? Symptoms differ much between patients - diplopia is my only symptom.

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Replies to "Hi, this forum was very helpful to me also, as CLIPPERS is so rare and few..."
Ame | @astanko | Jan 14 10:22am

Hi. I’m curious, how was your biopsy done? Was it by needle into your brainstem? My neuro said mine was impossible to biopsy. My diagnosis was purely based on MRIs and the fact that when they gave me a 1,000 mg shot of Prednisone I immediately began to improve.

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