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@dloos

My issues may be a bit different than most. Pain and fatigue are not my main issues. I have altered perception. My hearing is shot with extreme pressure in both ears. My eyesight is blurry and my nasal passages swell shut. I’m being treated for inflammation as a result of Mast Cell syndrome. I am dizzy, and
I also have digestive problems.
It’s very hard to have a normal life with these challenges.
So far the treatment has not made a difference, in fact I still feel I am getting worse.
I have an Integrative medicine team that I do have confidence in, but I am fairly new to treatment. I have started with a psychologist. I continue to feel that if my physical ailments improved, my psychological issues would resolve. But, in the meantime....
Right now I am basically an invalid, and I have not adjusted well to my new limitations.

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Replies to "My issues may be a bit different than most. Pain and fatigue are not my main..."

I'm sorry you are struggling. You're not alone, many of us have been in the depths of it and feel as you do right now. Sounds to me like you're working hard to advocate for yourself and problem solve. Keep up that good work and give yourself some grace, You recognize that your psychological state will improve with physical abilities. Even though it's hard, try to dig deep and purposefully look for what it is you CAN do in the moment verses what you can't. Can you actively use yours arms to lift a can or water bottle for some conditioning? Can you do legs exercises while laying in bed? Something that helps you feel like you are accomplishing physically activity may help.