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@jimhd

@kevinmc You've heard from the voices of (painful) experience. It seems that every person is unique.

I began with pain in the balls of my feet, gradually covering both feet. By now, it feels like a rope is tied tightly around my ankles, and the whole ankle is involved. Numbness and tingling is how it all started, and is what I feel from my toes to my knees.

I met with a pain therapist, and the most helpful thing I came away with is to focus on the pain and notice the different pieces of it. I focus on the tingling, and how it pulses with my heart beat. Or I pay attention to the numbness. She had other good mindfulness exercises that have worked, as well, for my CIDP.

It's hard to relax a hurting body part, but it does relieve pain for me sometimes, if it's what is needed. Two other things - lidocaine 5% cream helps temporarily, and soaking in a bucket of cool tap water. Has anything helped you?

Jim

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Replies to "@kevinmc You've heard from the voices of (painful) experience. It seems that every person is unique...."

I also stated with just tingling, and now have the stiffness and tightness you describe. It feels like someone is squeezing my foot especially in the arch area. Haven't lost strength yet but the tightness does make it feel as if I cannot lift my toes. It is such a disruption from every thought at every moment. It is definitely taking its toll mentally. I still have no diagnosis or reason for the sensorimotor neuropathy. Idiopathic Neuropathy feels like a cop out and I'm trying to get to the bottom, so that treating it may be more targeted.