The lymph node involvement is in my thorax. The non-enlarged supraclavicular lymph nodes bilaterally and within non enlarged lymph nodes at the thoracic inlet. Activity is greatest in a non enlarged left paraspinous node.
I have had 1 shot of lupron and my PSA has fallen to 0.05. I am due another shot in march. My local oncologist wants me to start with Xtandi, to be taken alongside the lupron, but is encouraging me to get a second opinion, therefore I am trying to get an appointment at the Mayo. My local oncologist also wanted a biopsy of the involved nodes but getting tissue samples is more than they can do locally.
About 8 years ago I was enrolled in a neurological clinical trial, for an auto immune disease, at the Mayo, which proved to be highly successful, so I fully understand the incredible dedication and professionalism of everyone at the clinic. I think I can only benefit from their input on my condition.
What seems to surprise my local physicians is that the cancer is only in my lymph nodes. I have no doubt that this will change in time but as of the moment I feel good with very manageable side effects from lupron.

Thank you all for your time. My very best wishes to you all.
Merry Christmas