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Biologic caused infections

Autoimmune Diseases | Last Active: Dec 27, 2023 | Replies (62)

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@lmoross

I had Dr. Scott Volgesang. Very nice man with a sense of humor that I also appreciate. He was the mentor for my local rheumatologist. I went to him for confirmation of PMR. I also had it confirmed at Mayo. They both believed my current rheumatologist is following the correct treatment plan.
Going off Actemra might be a good choice for you. I don’t believe I will ever do a biologic again. It changed my life forever in a negative way by the suppression of my immune system.

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Replies to "I had Dr. Scott Volgesang. Very nice man with a sense of humor that I also..."

I feel the same. No more biologics.

I know Dr. Vogelgesang. I actually saw him long before I was diagnosed with PMR. I was diagnosed with reactive arthritis but it wasn't causing any problems.

I also had advanced degenerative arthritis in my right knee caused by a sports injury and knee surgery as a teenager. I was just wanting to "establish care" at UIHC but I wasn't having any difficulty at the time. I started having problems a few years later but I didn't reestablish care in rheumatology. That was a big mistake on my part. I should have went back much sooner than I did.

Dr Volgelgesang did have a good sense of humor. My knee was hurting more than anything. He said at 35 years old, I was too young to have a knee replacement. He said there wasn't much else that could be done except for NSAIDs. Then he asked one of the residents what was the "flavor of the month" for NSAIDs.

I saw him occasionally after that visit but not as a patient. He would always ask me how I was doing. I didn't tell him about my problems because I didn't think I was having a rheumatology problem. I was just having recurrent flares of uveitis and my ophthalmologist was treating flares of uveitis with prednisone. I was self medicating with left over prednisone which worked well for all the additional pain I was having. My knee wasn't hurting at all.

I didn't reestablish care in rheumatology until I was 52 years old when PMR was diagnosed in addition to reactive arthritis and uveitis.