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How long has PMR lasted - I'm trying to find the average

Polymyalgia Rheumatica (PMR) | Last Active: Dec 26, 2023 | Replies (136)
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@freeme

I was officially diagnosed April 20, 2023 and have been off prednisone with excellent crp and esr numbers since mid November. I probably had it starting much earlier in the year. I do not have any other auto immune conditions other than an extremely mild, asymptomatic case of hashimotos.

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DadCue | @dadcue | Dec 19, 2023

I would applaud you too. It is better to taper off prednisone as soon as you can. There is no rule about how long PMR lasts. It can be a few months or a few years and for some PMR may never go away.

For some people PMR goes away quickly. For others it persists for a long time. I do believe it is beneficial to start prednisone as soon as you realize there is a problem.

I had another autoimmune condition that wasn't hard to diagnose. Early treatment with prednisone at a high dose followed by a fast taper worked every time.

When PMR was diagnosed there was confusion about what it was. Prednisone was restricted and I didn't have enough prednisone to take. My rheumatologist actually wanted me to be completely off prednisone so she could see what was going on before she was able to diagnose PMR.

I ended up taking prednisone for 12 years after PMR was eventually diagnosed. My taking prednisone for years and years wasn't such a good outcome.

Considering everything that happened while I was on prednisone, I never want to take it again.

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