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← Return to Lupus or not Lupus?
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Hey, I have had 3 positive ANA/Lupus tests, too, and still told I don't have Lupus, but they don't come up with anything else, either. Nor do they seem sincerely interested in exploring anything! I just continue to have problems. I also had another experience with 5 CRP tests [for inflammation]. Four of the tests came back with results ranging from 5.9 to 8.5, but the only one that actually registered as High was the 8.5. When I had the 5th test come back as 5.9 and indicating as High, I contacted the Dr who ordered the test. I gave him the dates of the other tests and the results that showed at 5.9 and plus, and asked him if the reference range has changed for this test because the first 5.9 result and other higher results did not come back as High. He messaged me back & told me to check with the rheumatologist he had referred me to at one time, so I did so. The rheumatologist told me that I would have to check back with the Dr who ordered the test!! And, so it goes! I am so tired of the runaround and no answers!! I think the Drs have gotten themselves so overburdoned with patients that they are a disservice to all they serve! Just saying!
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I have been all over the map with auto-immune disease symptoms, tests, etc., and I will add this: I was constantly looking for a specific diagnosis. I just wanted an answer. What I've learned is that it isn't that easy. There isn't a specific treatment even if you get a specific diagnosis. They treat symptoms, not the disease itself. For me, I had doctors that said probably Lupus, a doctor that said sjogrens, etc. But the bottom line turned out to be that it really doesn't matter which of the hundreds of auto-immune diseases it is because they treat the symptoms, not the disease. At least this has been MY journey. So after years of not knowing specifically which auto-immune disease I had, and being treated for a lot of various symptoms (usually with prednisone), I ended up having 2 heart attacks. A heart biopsy verified that I have lymphocytic myocarditis, and I received a heart transplant. But I also have various other auto-immune diseases, including psoriatic arthritis, fibromyalgia, and a few others. Again, when symptoms flare up, they get treated. I hope this is helpful for those that just want an answer. Sometimes, there isn't a specific answer. And I'm ok with that now that I truly understand how it works with treatment.