Hello Canadian Momma,

I am sorry you are having to deal with this health issue. When I was first diagnosed with Polycystic Kidney Disease, I found I had to recover from the diagnosis. Being thrown into the world of medicalese (a language I still don't understand), diagnosis, fear for myself, and worries about the welfare of my 3 young children; it was all overwhelming. I remember scouring the internet for information at 3am, and wishing I could watch my drama unfold like a Lifetime movie, so I knew how it ended. So my heart is with you. This board is a great place for support and usually some great links for information.

I have had both of my kidneys removed, at different times. The first, during my kidney transplant, almost four years ago. And the second, 2 years ago. The first was an "open" surgery, which is what it sounds like, they opened me up with a large incision. The second was done laparoscopically - two small incisions for the scopes, and then Dr Prieto used my old C-section scar, as his larger (about 3") incision to remove the kidney. If you have had any of your children by c-section, or had any prior abdominal incision, ask if it's possible to use the old scar line as the point of incision for kidney removal.

Dr Prieto was wise in using old scar tissue for his incision, I did not have much pain, because there are no nerve endings on scar tissue. I did not know to advocate for this, but now that I do, I share the info with everyone:) My second kidney removal surgery was a breeze. I was on pain meds at hospital for 2 days, oral pain meds for about additional day or two, and by day 4 or 5 just Tylenol. Had to be careful bending over, twisting, etc for several weeks, and no lifting anything over like a gallon of milk for about 3-4 weeks. That was about it. It felt similar to a c-section.

My journey was different than yours but I will share a few tidbits that might be helpful.
Try to focus on positives - stay in the moment. "Right now, I am okay. My body is strong."
Advocate for what you need. Talk to others, with similar health issue, and get their advice.
Living with just one kidney, feels pretty much like living with two of them. I feel great.
My mother-in-law had kidney cancer 20 years ago. They removed one of her kidneys and she has been great ever since.
If your doctors are not giving you what you need, don't be afraid to get a second opinion. Mayo is great and their surgeons are best in their fields. There are other "hubs" that specialize in what you are dealing with. Find those doctors and go to them. You want the doctor, who does 3 of these surgeries before lunch, as opposed to the doctor that does 3 of these surgeries a year. It matters.

Wishing you the very best, and feel free to reach out to me, if I can be of any further help.