Laryngopharyngeal reflux (LPR)

Thank you so much! I am so desperately looking to get help. I am suffering so bad every day. I am on the generic of nexium 40 mg 2 times a day. I have also tried the generic of Prilosec same dose and protonix. I have been on an alkaline diet for a few weeks and I just bought an adjustable bed so I am sleeping on an incline. Thank you

Thank you for responding! I’m not sure what some of the things are that you are talking about. What is Gelsolin, FKTN, and LGMD? Thank you

Also, another symptom I have that I have not heard anyone mention was an acidic taste in my mouth almost all of the time. Does anyone else suffer from that? Thank you

@michele34, This is the easy part. Gelsolin is also known as GSN, or AGEL, or Finnish Amyloidosis, a systemic cell disease, Autosomally Dominant. Progresses very slowly, but eats on the whole body. GSN attacks the netting around each cell. Then this allows various proteins, etc. to invade the cell. The GSN gene is number 2934, I believe. FKTN is Fukutin Limb Girdle Muscular Dystrophy. It may be the missing partner gene to GSN, as almost no one, if any, who have FKTN tests negative for GSN. LGMD is Limb Girdle Muscular Dystrophy. FKTN is one of these, and there are many.

I'm and 82 Y.O. male who was able to eat and drink most things during my life, but I did have a lot of stomach acid and I ate a lot of tums for years. Age has a funny way to sneak up and show your health problems you didn't know you had. About 114 days ago, 5 of my buddies and I were playing our weekly card game. Of course, we drank some beer during the game as usual. After the game, I ordered a pizza to take home. After eating just two fairly small pieces of Pizza I developed a severe stomachache. My wife drove me up to the local ER and after many tests determined I needed immediate surgery. My stomach had grown up thru a hole in my hiatel hernia into my upper chest cavity between my lungs and rib cage. The surgeon pulled the stomach back thru the hole back where it belongs and used part of the stomach to do a 360 degree wrap to close the hole in the hernia. The reason given by the surgeon for the 360d wrap, was so that I wouldn't have GERD after healing from the surgery. The surgeon went on to tell me that had the stomach burst, I probably would not have made it. (Nice news, right?) For 5 days following the surgery I was in considerable pain and couldn't eat or drink anything, so they went back in to cut the two Sucher's holding the wrap, but inflammation didn't allow them to get to the wrap, so they inserted a feeding tube into my stomach which I've had since. During the second surgery they determined the wrap had slipped down a little but there was nothing they could do about it because of the inflammation from the original surgery. As of today, I'm still taking Jevity 1.5 twice a day and just recently starting to experiment with soft foods and juices. The message here, is DO NOT wait to see a GI doctor if you are experiencing any issues with acid reflux. Had I done so, they could have corrected the hiatel hernia issue and I would probably be completely healed, which I am not yet. The surgeon said we will just have to have patience to see how it heals. My quality of life has changed for the worse because I was too stubborn to see a gastrologist. Suggest you take heed if you are experiencing any stomach issues.

I have very similar symptoms. I have had, over the years total of five endoscopies, and many other GI tests at the hospital. I have GERD, and a condition involving very slow emptying of the contents of the stomach. I take 2 previcid, several sucralite, and 4 domperidone per day. The latter has been a wonder for me. Without domperidone for 24 hrs. I am back into severe, intolerable stomach pain. Unfortunately domperidone is not available in the US. There must be some esquivent. To be of any assistance with GERD the head of the bed has to be raised 8 to 10 inches. Therefore I can’t sleep on my side any more or my back is twisted into an uncomfortable position. Consequently I have to sleep on my back. It takes patience to change sleeping position but eventually it works.

There is a great book called The Acid Watcher diet by Jonathan Aviv, MD. It can at least help you with what you can and can’t eat. Good luck.

I also have LPR. It started as regular reflux about 13 years ago when I was pregnant. Then it turned to silent reflux. I never get heartburn. I have seen 2 gi, 2 ent and an allergist. None have been very helpful. They prescribed Flonase for my congestion and Claritin-d. I have been on 3 different ppi meds that didn’t work along with Pepcid before bed. I use Gaviscon with some relief. I have an adjustable bed to sleep at an incline. I have had an EGD and colonoscopy, Ct scans, an esophagram. I have the EGD with Bravo scheduled in Jan. I have totally changed my diet and lost 23 lbs which was not needed. I’m 5’3” and now weigh 107 🙁 I have purchased the acid diet books and read a ton of things online. Not sure what to do next. Has anyone found something that actually works or a doctor that knows what they are talking about. That seems to be my problem. I know the congestion, ear pain and pressure, nose blockage and cycling, throat gurgling, Globus sensation, and acid taste are all connected.

Do you have a hiatal hernia? Avoid wearing tight clothes around abdomen area and chest. Have you tried a PPI?

No, I do not have a hiatal hernia. They would have found it during the esophagram or EDG. I am not currently taking ppis. I was on omeprazole twice a day for a month with no help. Then pantoprazole twice a day for two months with no help. The side effects were awful so I stop taking them. I’m not a fan of tight clothing. And with the weigh loss all of my clothes are huge.