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Autoimmune Diseases | Last Active: Dec 27, 2023 | Replies (62)
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At least 3-4 were started before the central line. No actemra and no prednisone. I actually believe the PMR is gone. At least I hope so. My recent SED and CRP are elevated some, but I don’t feel typical PMR symptoms. I think it may due to some leftover pleural effusion from the pneumonia.
I was on Actemra for a year before stopping. I had tapered very slowly off prednisone after starting the biologic.
I had PMR for five years and was told by a university of Iowa doctor that it usually “disappears” in 1-5 years. Fingers crossed.
Hoping the same for you. Freedom from the disease and all associated medications.
Replies to "At least 3-4 were started before the central line. No actemra and no prednisone. I actually..."
Thank you and same to you.
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Do you know Dr. Tuetken? She was my rheumatologist at the University of Iowa for 15 years. I could still message her for advice and she would respond. I haven't seen her in a few years because I'm now going to the VA hospital across the street from the University. Dr Teutken saved me when PMR was diagnosed. I had many problems that cropped up after PMR was diagnosed.
I really think I can stop Actemra. I believe PMR is gone too. I had a couple of "interruptions" when Actemra was stopped but it was restarted. I didn't do well when Actemra was stopped. Now there seems to be a reluctance to ever stop Actemra.