← Return to Multiple Sclerosis (MS) - please introduce yourself

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@ericanelson02

My name is Erica. I have MS & Fibromyalgia, to name a few of the major ones. Oh, I also have a spinal stenosis and several compressed nerves within my spine. I was "formerly" diagnosed with Fibromyalgia in like 2015 but MS in 2018. I believe that I've had both for a very long time before those dates of formality. I suffer from a ton of pain, both muscle and nervous system related. I get swollen a lot because of the chronic inflammation. I've been to Neurologists, Rheumatologists, Spine Surgeons, and PCPs. Everyone states that my pain is due mostly because of my numerous spine issues - 1 major surgery down another 2 go because of issues with #1....the shortest way I could put it. I'd like to learn if others have the MS & Fibro like me? I'm wanting to gain more understanding about my diseases. I want to be encouraging as well as receive encouragement. My sleep is almost nonexistent these days so I'm fighting to survive most days (transparency).

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Replies to "My name is Erica. I have MS & Fibromyalgia, to name a few of the major..."

Erica, If you would refer to my lengthy response to Hansa you’ll read that I have multiple comorbidities and what I didn’t mention is that I was dx back in 1982-83 with Fibromyalgia. At that time it was my only clinical dx and my doctor downplayed the whole thing telling me I should see a psychiatrist and hit the gym…it was then that he began to prescribe various SSRI’s to see if they’d help alleviate any physical symptoms. I think he thought they’d also calm me. I had no evidence of any psychological issues and am of the nature to tackle things head on and figure out a way to deal with what comes my way. SO, what we now think is that the early fibro dx was probably my 1st recorded exacerbation of MS. I then “learned” to deal with the pain and discomfort for decades until I couldn’t anymore. That brings us to 2015 when I was dx w/late onset MS. I have no clue if the fibromyalgia is still an aggravating part of what is going on with me as I am seeking relief from any pain I might be experiencing. I am scheduled to see my neuro surgeon later this month review the findings on those most recent MRI’s.

I hope you receive some support and definitely encouragement to continue to seek answers for your issues…I hope to find in my new PCP an approach that is wholistic for mind and body and that he knows some Pharmocology as all the medications I take have effects on one another and obviously, me…finding a physician or team who can “look” at all of you would be my recommendation. They are most likely found in teaching centers and NHIS program’s. Good Luck to you…

Hi Erica - I read in your reply to another that you are experiencing extreme muscle spasms. About a month ago I tried Botox injections for spasticity/nerve pain. It actually works. I hope you look into it.