Repeat lumpectomy? And treatment decisions. Need advice

Hi
I feel your pain. I am awaiting my pathology. Had a lompectomy, December 15. My DCI s was in situ. The surgeon told me that it's a difficult cancer to remove. Because it's not like you can see a tumor so they have to go buy the ultrasounds and MRI . I now wait for weeks for follow-up and pray. He got it all he took quite a bit. My breath was left intact but much smaller than my left. He told me I will have to have radiation possibly tamoxifen but that's a drug. I will not take. I wish you well with your outcome

I also had a re-excision and my surgeon told me that, although it is rare, since the DCIS is invisible there was a possibility I could have to go in a 3rd time. Luckily that did not happen.
I just finished 20 treatments of radiation and will meet with my medical oncologist December 26th to discuss Tamoxifen. Your plan sounds similar to mine. Take care!

Hi again. I just got a call from surgeon telling me tumor board was cancelled this Thursday and will be rescheduled January 4. Just got a question. How long was the wait for your second surgery? In your pathology result , what grade do you have? Mine is Grade 2. I am thinking if I need to just let my doctor do the surgery sooner and not to present to Tumor board. Idk how fast the growth is.

@kikay
My first surgery was August 1st and my 2nd was September 28th.
However, after my first surgery my, surgeon told me I had clear margins so I thought I was good but when I saw my Oncologist’s on September 6th, they told me I needed more taken out. I ended up switching surgeons and luckily, he fit me in on September 28th.

Mine DCIS was also grade 2. It took over a month to get my first Pathology report back because it was sent to Mayo Clinic to also be reviewed by the pathologist’s there.

Hi
I feel your pain. I am awaiting my pathology. Had a lompectomy, December 15. My DCI s was in situ. The surgeon told me that it's a difficult cancer to remove. Because it's not like you can see a tumor so they have to go buy the ultrasounds and MRI . I now wait for weeks for follow-up and pray. He got it all he took quite a bit. My breath was left intact but much smaller than my left. He told me I will have to have radiation possibly tamoxifen but that's a drug. I will not take. I wish you well with your outcome

I had a similar lumpectomy. I now get checked every 6-12 mths ultrasound and mri.
I refuse to take tamoxifen and the various versions.
Thx for sharing..!

Oh wow. Hmmm. I was thinking to call the surgeon now and ask how fast we can get the second surgery ? So it can wait then. Like 1 1/2 month.

Because of my recent cancer diagnosis of Radiation Induced ANGIOSARCOMA - as a result of my 1st breast cancer in 2014 - I read several studies - the main one was published in July 2014 - that the new protocol is to not do a Lumpectomy but to do a mastectomy and depending on the low stage of cancer - (stage 1) and the small size of the tumor (less than 1.5 mm) no radiation is recommended. An aromatase inhibitor may be taken. I took the AI LETROZOLE (Femara). So prior to the July 2014 published study 2 months prior I had a Lumpectomy - 6 weeks of Radiation and took the AI. Pill LETROZOLE (Femara) and 9 years later I got breast cancer in the same breast - I was diagnosed with ANGIOSARCOMA - which is the delayed side effect of receiving radiation for the treatment of breast cancer in 2014. It was cancer of my blood vessels- and it is rare and Aggressive. I just had a Mastectomy of my breast. It was recommended that I have no treatments but will be monitored by scans every 3-6 months and have conversations with My Lord and Savior Jesus Christ every thinking moment. I regret that they would not allow me to have my breast removed the first time - if I would have had it removed I wouldn’t have had to take 6 weeks of radiation but I would have taken the AI Pill Letrozole (Brand name: Femara). I just wanted to give you an insight of my 2 cancers - and what I’ve learned. Not to tell you what to do. But I did do lots of research and read studies on my new type of cancer Radiation Induced ANGIOSARCOMA (R-I-A)
This is Mulkey518.
May God continue to Bless you.