← Return to CRPS - anyone suffering with complex regional pain syndrome

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@JustinMcClanahan

@daveandchris, giving up piano as a pianist must be hard to reconcile with. You mentioned your pain has got better in your hands but the stiffness remained. Is that something you hope to improve over time to be able to play again, or is that not a realistic outcome? Have you found any other hobbies to help distract from the pain?

I'd like to invite @airey2 who also broke their wrist recently and talked about CRPS issues as a result.

@daveandchris, you mention you have seen many doctors and have given up trying to find one who will listen or offer help. Did you explore your SI joint as one had mentioned?

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Replies to "@daveandchris, giving up piano as a pianist must be hard to reconcile with. You mentioned your..."

My right hand was never able to regain the fluidity of motion, as well as reaching an octave. Gardening was one of my passions, but my back makes it very difficult. I’m looking into raising the beds in my front yard so I can, once again, play in the dirt.
As Jacob T Marley said, People should have been my business. I have been serving in a society of women who minister to one another. I have always loved reaching out to others. Being depressed, it has been a great way to forget myself as much as possible, and serve others. I is amazing how much I forget my hand while I talk to others who also need healing. This is another passion, and one I can do. Also, family.
As far as my SI joint, I have found no help. I finally received a call from the university that helped me ten years ago, but their schedule is out two months. They may have a cancellation in three days. In spite of it being a long drive for me, I told them I will do all I can to come, if it opens up.
It isn’t a cure, I know. But they were more knowledgeable than anyone close by as far as therapy within CRPS parameters. And they sure tried over and over to help me get to remission. I’m just back in the dark, here.