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CAR-T Cell Therapy: Introduce yourself and connect with others

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)
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@esperanza3a

Hi Bob,
I follow your regiment except for yoga. My bone marrow was 97% impacted with myeloma cells by the time I received carT my bones are weakened. I fractured two lumbar vertebraes as result so yoga is out. Surgeons packed them with med cement and that has worked pretty well. I walk about 2 miles a day and adding more steps.
It amazes me that 3 months post treatment there is zero evidence of myeloma. This treatment is a wonder. My blood counts are still low as there are still CarT cells at work attacking good cells but that will slow down eventually. Everyone has a different response to CarT.

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Replies to "Hi Bob, I follow your regiment except for yoga. My bone marrow was 97% impacted with..."
Bob, Alumni Mentor | @grandpabob | Dec 19, 2023

Car T does work well in many cases, unfortunately as you mention, not in all cases. Given that it tends to be a last line of treatment, it certainly gives a better life to many.

I understand what you mean by low blood levels, mine are extremely low, I am told that this will be my normal going forward.

Are you receiving IGG infusions periodically to bring those levels back up from time to time?

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