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Recently Diagnosed with Nephroptosis (floating kidney). Anyone else?
Kidney & Bladder | Last Active: Nov 18 2:08pm | Replies (26)Comment receiving replies
Hello! I was diagnosed just over a year ago with nephroptosis, but i was pregnant with my second when diagnosed. At almost 3 months postpartum, i was laying down and noticed that it was back..but now its bilateral. Both my kidneys just sit in my abdomen unless i am rolling or turning. I have seen/talked to 10+ doctors and none of them have seen it before. I have a phone appointment with Mayo this morning..
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@cocorich - if you are interested I know of a doctor at University of Texas Southwestern (UTSW) a medical teaching hospital in Dallas, TX who does do the surgery if he decides it is appropriate. Every other kidney surgeon I saw in the Dallas area does not consider it a medical problem that needs addressing. What the doctor at UTSW decides to do is based on your individual case. Please let me know if you are interested in talking with him? I can share his name, he told me he does about one surgery per year - it is rare, but you still need help if it is happening to you.