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Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)
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@thieschafer

In December of 2022, I had a 2 cm tumor and an upper lobectomy was done. All lymph nodes were negative for spread. 6 month later CT was fine. Then in November 2023, I had a suspicious CT then a brain MRI, PET and Breast ultrasound. Also of which revealed stage 4 lung cancer spread to lymph nodes and breast. Treatable but not curable.
A MET marker was discovered and I am about to start taking Tabrecta. I am hoping this will prolong my life at least for a couple of years. Anyone else taking targeted therapy?

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Replies to "In December of 2022, I had a 2 cm tumor and an upper lobectomy was done...."
pb50 | @pb50 | Dec 18, 2023

How terrible. Can you share what kind of cancer your original tumor was?

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Lisa, Volunteer Mentor | @lls8000 | Dec 19, 2023

Hi @thieschafer, I have an ALK mutation, and have been taking a first-line targeted therapy for 43 months now, but who's counting. That's longer than the median for this particular drug, so I'm appreciative of the science behind these drugs. Some of us get lucky and go beyond expectations, I'm hoping that you are one of those. Learning to accept that there are things that we just can't control can help, but it's not easy.
I'm hoping that you do well on the Tabrecta, with minimal side-effects. Did your doctors test your tissue from your original surgery for biomarkers, MET?

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