Connect
← Return to Undifferentiated Pleomorphic Sarcoma
Discussion
Undifferentiated Pleomorphic Sarcoma
Sarcoma | Last Active: 1 day ago | Replies (77)Comment receiving replies
Hi ddbumb @ddbumb Sorry to hear about your diagnosis. I was diagnosed with synovial spindle cell sarcoma in my left lung in January this year. It's been a rollercoaster this year. After 2 surgeries, chemo and radiation, it seemed to be gone but I just found out its back. I don't know what to think. My doctors are figuring out what treatment is next. What chemo drugs are you getting now? Is your cancer aggressive?
Replies to "Hi ddbumb @ddbumb Sorry to hear about your diagnosis. I was diagnosed with synovial spindle cell..."
I’m sorry to hear that you have gone through so much & cancer has returned. We are battling with insurance company at the moment. The original plan was for Doxorubicin & Keytruda. Insurance has denied Keytruda saying it is experimental and not allowed with BCBS. Doctors are trying to fight the denial so unfortunately treatment is on hold.
Hi Scs23, hope the holidays were kind to you! In response to your question yes the UPS is aggressive. Comparing CT scans from November 2023 to January 5 2024 it has almost doubled in size. Had my 1st round of chemo on the 5th so probably won’t know much until after 2nd or 3rd round.
Connect
I am starting Doxorubicin & Keytruda-Pembrolizumab. So far the cancer is not very aggressive. Have several areas of the right lung that have been detected but no large mass. I hope you are doing well & wish you the best. Please keep me informed of your progress!