← Return to Appendiceal Neuroendocrine Tumor: any experiences to share?

Discussion

Appendiceal Neuroendocrine Tumor: any experiences to share?

Neuroendocrine Tumors (NETs) | Last Active: Dec 18, 2023 | Replies (6)
Comment receiving replies
@maymaria

Yes. 0.8cm appendiceal Neuroendocrine tumor.

Jump to this post

Replies to "Yes. 0.8cm appendiceal Neuroendocrine tumor."
Teresa, Volunteer Mentor | @hopeful33250 | Dec 18, 2023

We have another discussion on Connect discussing NETs found in the appendix. Here is a link to that discussion, https://connect.mayoclinic.org/discussion/pet-scan-2/?commentsorder=newest#chv4-comment-stream-header

You must be relieved that the other tests came back negative. Have your daughter's doctors suggested any follow-up test for NETs in the future?

Regarding your concern about the POTS diagnosis, I'm wondering what tests were done to confirm this diagnosis? Here is a link to a Connect discussion on POTS in the Heart Rhythm support group, https://connect.mayoclinic.org/discussion/pots-in-12yo-daughter/

Has your daughter been seen by a cardiologist?

VIEW AND REPLY