Thanks for your input, Colleen. However, I have already called the EDS Clinic at Mayo in Jacksonville. They gave me an appointment for a phone call to schedule an actual appointment. When they didn't call me at the day/time scheduled, I called them. They advised that they were no longer accepting appointments. I asked if there was a wait list...no. I asked how often I should call to try to get in...weekly, monthly, etc. They said I could try to call again in a year.
Is there any way you could look into this and see if this info is correct, and possibly convince them to start a waiting list? Surely you can see (hear) how frustrating this is. Thank you! Ginny