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Biologic caused infections

Autoimmune Diseases | Last Active: Dec 27, 2023 | Replies (62)

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@lmoross

Yes, vancomycin caused liver damage for me. And to top it all off my doctor accused me of being a drinker. When I told him I rarely have any alcohol, he held up his hand as if in court and asked me to swear. Very hurtful and offensive. In retrospect it makes me angry.
He told me I would be in the hospital 3-4 days for a procedure to remove pleural effusion from my collapsed lung due to pneumonia two months prior. The pneumonia was related to the biologic I was on for Polymyalgia Rheumatica.
I was hospitalized for that and almost died after going septic.
This time 3-4 days turned into 19.
I had walked into the hospital but after they got ahold of me, I had hospital pneumonia, some other mysterious infection, severe anemia and of course, the liver damage. I was even unable to walk. I checked myself out when they wanted to do surgery on my lung.
I went to Mayo Clinic and received the care I needed which was to give my body time to recover. No surgery needed.
So currently my rheumatologist wants to start immunosuppressants again. I said no. My belief is that doctors must be getting kickbacks for prescribing these drugs. Perhaps that is why they push them.
What has happened to medicine?

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Replies to "Yes, vancomycin caused liver damage for me. And to top it all off my doctor accused..."

My question was going to be how many IVs were restarted before a central line was placed. I didn't want to assume anything but weeks of vancomycin is tough! Not fun for the nurses either.

So Actemra is stopped ... are you back on prednisone? I'm not a fan of prednisone either because it nearly killed me. I was in intensive care for a few days.

I have stopped Actemra twice but I didn't do so well. I keep telling my rheumatologist that I'm willing to stop Actemra again just to see what happens. Three times is a charm they say.

Anyway ... I'm extremely sorry you had to go through all of that!

Such a horrible time for you.
I feel I would rather take my chances with my health diagnosis. At least I know what I am dealing with unlike when you take biologics.