Repeat lumpectomy? And treatment decisions. Need advice

Posted by kikay @kikay, Dec 15, 2023

Just had lumpectomy Dec 1. Pathology report was: positive margin on the posterior edge DCIS Micropapillary Grade 2. My surgeon called me yesterday for re-excision or another lumpectomy. I was hesitant to do it since I am a single mom and I was so difficult for me and my teens . Today he said he present my case to the tumor board to help me decide. Any suggestions? Did my surgeon messed up and missed the rest of the cancer cells? Or he just didn’t see the cancer with his naked eye just what he told me? What is the percentage that second surgery will be successful. ? After this , my oncologist said I will have radiation and hormone therapy for 5 years since my ER is positive. I need help in decision making please.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@mchler73

@kikay
You will be perfectly ok to be around your family and they are safe. The actual treatments are painless and only take about 15 to 20 minutes each time. Positioning you so that you are in the correct spot each time takes the longest.
The side effects are usually progressive and apparently most people don’t start having any until about week 2. But everyone is different. I was told the most common side effect is fatigue. Hopefully your side effects are minimal and you will be fine to work.
I was lucky enough to be able to work from home, which was nice, in case I started feeling tired or had pain. If your work allows that, it might be something to check into, just in case.
I was super nervous to start treatments but it was definitely worse in my mind than it actually was.
When are you supposed to start your treatments?

Jump to this post

If I will do the second surgery ( waiting for the recommendation from the tumor board or I can just tell my surgeon I am ok with the second one instead of waiting for the tumor board presentation) 2 months after that. So looking maybe last week of February or March) not sure. But oncologist said , I need to be totally healed from the surgery before we start the radiation.

REPLY
@kikay

If I will do the second surgery ( waiting for the recommendation from the tumor board or I can just tell my surgeon I am ok with the second one instead of waiting for the tumor board presentation) 2 months after that. So looking maybe last week of February or March) not sure. But oncologist said , I need to be totally healed from the surgery before we start the radiation.

Jump to this post

@kikay
Both my Medical oncologist and my Radiation oncologist told me that having the re-excision and then the radiation would give me the best chance for it not to return. Your DCIS seems similar to mine and if you have positive margins I would think your best bet would be to have the surgery and pray they get it all and then do the radiation. But you have to do what you feel is best for you. I will be praying for you!

REPLY
@kikay

Hi again. Sorry I have another question. Since cancer can’t be seen with the naked eye, when surgeon takes the lump out and see that the posterior edge is already black and suspicious that is why it was sent to pathology, how come surgeon didn’t go back inside to clean up more on the posterior edge instead of closing it and waited for the pathology report? Just a thought.

Jump to this post

I thought that anything "cut out" of our bodies is examined by pathology. That is how they know that the margins are good or not. My hospital is able to examine the tumor while I was in the operating room.
I wish you well in your decisions

REPLY

I had a lumpectomy for invasive DCIS and the surgeon did not get clear margins. I had the second surgery as I wanted to do everything to ensure that the cancer was gone. After surgery, I went through chemo and radiation, and I am on an AI for at least 5 years. That was my journey, and you need to do what is right for you. I wish you all the best.

REPLY

I had a lumpectomy along with removal of 13 lymph nodes (cancer present in 7) on 1/3/2020. I had been on the hormone blocker Letrozole for 7 months prior and remained on it until starting chemo (because of the lymph node involvement.) My surgeon did not get clear margins, and so I had a 2nd lumpectomy on 1/31/2020. I began chemo a month later followed a month after that by radiation. I then resumed the Letrozole the day after finishing radiation. I suffered major fatigue during chemo, so perhaps I didn't notice; but I don't remember any significant fatigue from radiation. I actually walked to radiation on average of 4x a week to rebuild strength and balance

REPLY
@mchler73

@kikay
Both my Medical oncologist and my Radiation oncologist told me that having the re-excision and then the radiation would give me the best chance for it not to return. Your DCIS seems similar to mine and if you have positive margins I would think your best bet would be to have the surgery and pray they get it all and then do the radiation. But you have to do what you feel is best for you. I will be praying for you!

Jump to this post

Thank you so much for the prayer and advice. I appreciate it.

REPLY
@maggieb892

I thought that anything "cut out" of our bodies is examined by pathology. That is how they know that the margins are good or not. My hospital is able to examine the tumor while I was in the operating room.
I wish you well in your decisions

Jump to this post

Thank you for your input.

REPLY
@delormv

I had a lumpectomy for invasive DCIS and the surgeon did not get clear margins. I had the second surgery as I wanted to do everything to ensure that the cancer was gone. After surgery, I went through chemo and radiation, and I am on an AI for at least 5 years. That was my journey, and you need to do what is right for you. I wish you all the best.

Jump to this post

Thank you for sharing .

REPLY
@dlmdinia

I had a lumpectomy along with removal of 13 lymph nodes (cancer present in 7) on 1/3/2020. I had been on the hormone blocker Letrozole for 7 months prior and remained on it until starting chemo (because of the lymph node involvement.) My surgeon did not get clear margins, and so I had a 2nd lumpectomy on 1/31/2020. I began chemo a month later followed a month after that by radiation. I then resumed the Letrozole the day after finishing radiation. I suffered major fatigue during chemo, so perhaps I didn't notice; but I don't remember any significant fatigue from radiation. I actually walked to radiation on average of 4x a week to rebuild strength and balance

Jump to this post

Thank you for sharing your story. I’m sorry to hear about it but I can tell you are a very strong person and that gave me so much encouragement. God bless.

REPLY

Hi
I feel your pain. I am awaiting my pathology. Had a lompectomy, December 15. My DCI s was in situ. The surgeon told me that it's a difficult cancer to remove. Because it's not like you can see a tumor so they have to go buy the ultrasounds and MRI . I now wait for weeks for follow-up and pray. He got it all he took quite a bit. My breath was left intact but much smaller than my left. He told me I will have to have radiation possibly tamoxifen but that's a drug. I will not take. I wish you well with your outcome

REPLY
Please sign in or register to post a reply.