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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 16 hours ago | Replies (7049)

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@jmjlove

Wow! Sounds terrible. But it does help to have a diagnosis. For me, when no one can tell me difinitively what the beejeebers is going on, I tend to obssess. At least I can be proactive if I know what's going on.

11 months in a boot is a very long time! Swelling and pain must have been hard to deal with!

My son, almost one year ago had a terrible scaffolding accident. His worst injury was crushing, literally, both bones in lower right leg. Trauma team did immediate surgery to drain blood and fluids. Put him in a contraption that was both inside and outside held in place with metal to keep foot from flopping. He had to wait 4 weeks for the big fixit surgery. The surgeons choose to rebuild the leg rather than amputate. Thank God. At ankle and knee there was large bone fragments they could attach rods and screws to. He spent 5 months in a hospital bed at home. Then, incrementally he increased time spent upright. Seems he would have been a perfect candidate for CRPS. Been almost a year and he is just now getting back to work. Got married on crutches. He ran his own business, so he can limit type of work he takes on.

Is CRPS an auto-immune condition? Like rheumatoid? Son will never regain ROM, but is just thankful to have his leg. Hopefully the healing continues.

Strange how your poor skin is affected. Son's leg is still swollen and purplish. But skin seems ok, so that's good. How is your ankle now, or are you doomed to pain for the long haul?

If I'm being a pain, do not worry, I am just curious and am trying to understand what CRPS patients deal with....not add to your pain 😉 I won't be offended if you don't reply. God bless.

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Replies to "Wow! Sounds terrible. But it does help to have a diagnosis. For me, when no one..."

Thank God they saved his leg. I had a blood clot in my foot a few years ago and almost lost it to amputation. And I agree knowing is so better. Wishing u ur son pain free days.